India News | Infant with Rare Disease Administered Costly Imported Medicine
Get latest articles and stories on India at LatestLY. Teera Kamat, a six-month-old suffering from a rare disease, on Friday was administered a medicine whose cost is estimated to be Rs 16 crore and for which the Centre had waived off import duty and GST, officials said.
Mumbai, Feb 26 (PTI) Teera Kamat, a six-month-old suffering from a rare disease, on Friday was administered a medicine whose cost is estimated to be Rs 16 crore and for which the Centre had waived off import duty and GST, officials said.
The child suffers from Spinal Muscular Atrophy, also known as SMA Type-1, a rare condition in which a complete breakdown of nerve cells in her brain and spinal cord result in zero control over muscle movement.
The infant was given the imported Zolgensma medicine in Hinduja Hospital and is likely to be discharged on Saturday, they said.
Zolgensma will help replace the missing or non-working motor neuron with a new one, they added.
Her parents, Priyanka and Mihir Kamat, had made fund raising appeals on social media and had also appealed to the government for relief on import duty and GST.
(The above story is verified and authored by Press Trust of India (PTI) staff. PTI, India’s premier news agency, employs more than 400 journalists and 500 stringers to cover almost every district and small town in India.. The views appearing in the above post do not reflect the opinions of LatestLY)